Goala | Number of RDPOs (per cent of 61 survey respondents)b |
---|---|
To raise community awareness and knowledge of the disease | 59 (96.7) |
To provide information or education to patients and/or their families | 59 (96.7) |
To provide information or education to health professionals | 50 (82.0) |
To provide social support or networking opportunities for patients and/or their families | 55 (90.2) |
To provide services (for example, respite care), financial assistance, or other resources (for example, equipment) to patients and/or their families | 25 (41.0) |
To support or promote research on the disease | 56 (91.8) |
To advocate to government or other authorities for research funding, other research resources, or changes in regulations relating to research | 36 (59.0) |
To advocate to government or other authorities on other matters (for example, access to services or existing therapies) | 41 (67.2) |