Survey of healthcare experiences of Australian adults living with rare diseases

Table 1 Characteristics of the survey response group

	Number of people	% of Response
Sex (n = 744)
Female	568	76.3
Male	176	23.7
Age groups (n = 234)
18–34 years	61	26.1
35–64 years	129	55.1
65 years and over	44	18.8
State of residence (n = 741)
New South Wales	212	28.6
Victoria	182	24.6
Queensland	159	21.5
Western Australia	92	12.4
South Australia	44	5.9
Australian Capital Territory	25	3.4
Tasmania	23	3.1
Northern Territory	4	0.5
Role of person answering the survey (n = 741)
A paid support worker	6	0.8
A person living with a rare disease.	661	89.2
A relative/carer of a person with a rare disease	74	10.0
Other	0	0
Number of rare diseases per person (n = 746)
1	628	84.2
2	93	12.5
3	21	2.8
4	4	0.5
Self-reported health status (n = 743)
Excellent	25	3.4
Very good	113	15.2
Good	211	28.4
Fair	256	34.5
Poor	138	18.6

ISSN: 1750-1172