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Table 2 Concordance between consortium principal investigators and corresponding patient advocacy group responses

From: The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network

 

Average of corresponding PAG responses

Average PI response

Very negative

Somewhat negative

No impact

Somewhat positive

Very positive

very negative

0

0

0

0

0

somewhat negative

0

0

0

0

0

no impact

0

0

0

0

0

somewhat positive

0

0

1

3

2

very positive

0

0

0

4

7

  1. PIs principal investigator, PAG patient advocacy group