Skip to main content
Fig. 2 | Orphanet Journal of Rare Diseases

Fig. 2

From: A systematic literature review of the disease burden in patients with recessive dystrophic epidermolysis bullosa

Fig. 2

Differences in QOL between a EB subtypes (via QOLEBa), b skin diseases (via Skindex-29b). Adapted from: Cestari [69], Eisman [70], Frew [71], Jeon [59]. DDEB, dominant dystrophic epidermolysis bullosa; EB, epidermolysis bullosa; EBS, epidermolysis bullosa simplex; JEB, junctional epidermolysis bullosa; QOL, quality of life; QOLEB, Quality of Life in Epidermolysis Bullosa; RDEB, recessive dystrophic epidermolysis bullosa. aQOLEB is an EB-specific patient-reported outcome measure with scores ranging from 0 (best possible function/highest possible QOL) to 51 (lowest possible function/worst possible QOL). bSkindex-29 is a dermatology-specific patient-reported outcome measure with scores ranging from 0 (best possible QOL) to 100 (worst possible QOL)

Back to article page

Orphanet Journal of Rare Diseases

ISSN: 1750-1172