Citation, study design | Country | Patient population | Sample size, N | Cost per patient per yeara | Cost year | Definition |
---|---|---|---|---|---|---|
Dressing costs | ||||||
Jeon [59] | South Korea | RDEB | 13 | $4296 | 2016 USDc | Dressings, fixing materials, topical agents and medicines used during changes |
Patient surveyb | ||||||
Mellerio [62] | United Kingdom | RDEB | 40 | $9049 | 2016 GBPc | Cost of dressing |
Patient and caregiver surveyb | Â | RDEB, severe | 17 | $17,151 | Â | Cost of dressings |
 |  | RDEB | 11 | $15,293 |  | Cost of hours spent dressing wounds |
Grocott [76], single-center, cross-sectional surveyb | United Kingdom | RDEB, with wounds difficult to manage with conventional dressings | 11 | $28,727 | 2012 GBP | Dressing materials, costs estimated via monthly dressing orders |
Kirkorkian [77], | United States | RDEB, neonate | NA | $4,000–$47,000 | 2014 USD | Cost of wound care products obtained from Amazon.com (August 2012 prices) based on body-size |
Cost exercise model |  | RDEB, infant |  | $8,000–$99,000 |  |  |
 |  | RDEB, 10 year old |  | $20,000–$245,000 |  |  |
Flannery [78], Patient surveyb | Ireland | EB | 5 (4 RDEB) | $32,256 | 2020 EURc | Median wound and drugs cost |
Medical, non-dressing-related costs | ||||||
Jeon [59], Patient surveyb | South Korea | RDEB | 13 | $3096 | 2016 USD | All RDEB expenses excluding dressing costs |
Mellerio [62], Patient and caregiver surveyb | United Kingdom | RDEB | 10 | $1249d | 2016 GBPc | Cost per hospital stay, assuming ₤212 per day |
Flannery [78], Patient surveyb | Ireland | EB | 5 (4 RDEB) | $84,534 | 2020 EURc | Median total medical costs |
 |  |  |  | $33,679 |  | Median overnight hospital costs, assuming €813 per night |
 |  |  |  | $2890 |  | Median day clinic costs, assuming €407 per visit |
 |  |  |  | $1304 |  | Median other primary care costs, including GP visits, physiotherapy, occupational therapy, public health nurse visits |