Table 1 General characteristics of Prader-Willi patients
Patient characteristics | |
N | 85 |
Age (years) | 28.05 ± 8.73 [18.00–51.00] |
Sex N (%) | Female 45 (52.9) Male 40 (47.1) |
BMI (kg/m2) | 36.76 ± 10.74 [19.60–68.00] |
Diabetes N (%) | 21 (24.7) |
Hypertension N (%) | 10 (11.8) |
Dyslipidemia N (%) | 16 (20.2) |
Active smoking N (%) | 7 (8.9) |
Genetics | |
del(15)(q11-q13) UPD(15)mat | Female 26 (30.5), male 21 (24.7) Female 19 (22.4), male 19 (22.4) |
Conditions of lockdown | |
Usual place of residence N (%) | Family home: 60 (70.6), health-care institution: 25 (29.4) |
Geographic region N (%) | Greater Paris region: 59 (69.4) |
Number of rooms/Number of habitants (except institutions) | 1.42 ± 0.59 [0.50–3.67] |
Daily occupations | |
Usual daily activity N (%) | Work 27 (31.4) School 18 (20.9) Leisure activities 22 (25.6) No activity 19 (22.1) |
Physical activity | |
Change in physical activity N (%) | Increased 16 (18.8), decreased 57 (67.1), stable 12 (14.1) |
Daily number of physical activities | 1.54 ± 0.97 [0.00–4.00] |
Type of physical activity (%) | Walking 39.1% Fitness 22.0% Exercise bike/treadmill 15.3% Gardening 11.2% Housekeeping 7.8% Outdoor games 4.6% |
Change in time being sedentary N (%) | Increased 60 (75.0), decreased 5 (6.2) stable 15 (18.8) |
Sleep | |
Change in time spent sleeping N (%) | Increased 20 (24.1), decreased 5 (6.0), stable 58 (69.9) |
Weight/eating habits | |
Change in weight (kg and %) | kg: − 0.96 ± 3.28 [− 13.00; + 5.00] %: − 1.07 ± 3.26 [− 10.00; + 6.25] |
Change in weight N (%) | Gain 22 (27.5), loss 39 (48.8), stable 19 (23.7) |
Change in eating behavior N (%) | Worse 17 (20.7), improved 29 (35.4), stable 36 (43.9) |
Aggressivity towards food N (%) | Yes 16 (20.0) |
Psychological impact | |
Difficulties during lockdown N (%) | Major 11 (12.9), minor 38 (44.7), none 36 (42.4) |