Table 1 Domain 1 “Impact of BS on the caregiver”
Questions | Answers n (%) |
|---|---|
Has the illness of your family member or partner an influence on your life? | 1—My life has not been influenced at all: 7 (7%) |
2: 19 (20%) | |
3: 37 (39%) | |
4: 21 (22%) | |
5—My life has been completely influenced: 11 (12%) | |
Do you organise your life according to the needs of your family member or partner? | Yes: 61 (65%) |
No: 33 (35%) | |
Do you feel stressed of having to take care of you family member or partner? | 1—I am not at all stressed by having to take care of my family member: 31 (33%) |
2: 26 (28%) | |
3: 25 (27%) | |
4: 6 (6%) | |
5—I am incredibly stressful by having to take care of my family member: 6 (6%) | |
Do you think that the illness of your family member or partner affects your relationship with your friends/family/partner? | Yes: 21 (22%) |
No: 61 (65%) | |
No opinion: 12 (13%) | |
Does the health status of your family member or partner affect your mood? | Never: 2 (2%) |
Rarely: 22 (23%) | |
Sometimes: 29 (31%) | |
Often: 36 (38%) | |
Always: 5 (5%) | |
How do you evaluate your mood? | It tends to be stable: 31 (33%) |
It tends to be unstable: 12 (13%) | |
I feel depressed: 2 (2%) | |
It tends to be anxious: 25 (27%) | |
It tends to be calm: 11 (12%) | |
Alterations of anxiety moments of depression: 12 (13%) | |
How long do you work in providing care to your family member or partner (e.g. help with everyday activities or treatment management)? | Less than 1 h per day: 58 (62%) |
1–2 h a day: 15 (15%) | |
Between 2 and 4 h per day: 9 (10%) | |
More than 4 h per day: 12 (13%) | |
Do you feel guilty because you would like to do more for your family member or partner? | Never: 12 (13%) |
Rarely: 14 (15%) | |
Sometimes: 24 (26%) | |
Often: 32 (34%) | |
Always: 11 (12%) | |
Do you have to take care of your home and family when your family member or partner does not feel okay? | Never: 3 (3%) |
Rarely: 16 (17%) | |
Sometimes: 25 (27%) | |
Often: 23 (24%) | |
Always: 27 (29%) |