Workshop 1: The multiple clinical manifestations of XLH | |
Part 1 | Attendees were split into 13 groups and asked to list all children, adult and overlapping manifestations of XLH |
Part 2 | Attendees were asked to identify the XLH manifestations that, as a group, they considered to be well known, commonly missed and challenging in their clinical practice |
Workshop 2: Establishing treatment goals for people living with XLH | |
Part 1 | Attendees were split into 13 groups†. In their groups, attendees listed the treatment goals for patients and healthcare professionals |
Part 2 | Attendees were then asked to identify the treatment goals that, as a group, they considered to be (1) most important and (2) most challenging |
Workshop 3: Challenges of transition from paediatric to adult care | |
Part 1 | Attendees were split into 13 groups and asked to select their top 3 transition challenges, as a group |
Part 2 | Co-chairs facilitated a discussion with all attendees and established the top 10 transition challenges |
Part 3 | Attendees then voted individually for their highest-ranking transition challenge |