• Prepare young people for transition early | |
• To promote a gradual increase in disease knowledge and development of self-management skills | |
• Utilise technology platforms familiar to young adults to provide educational resources and encourage engagement | |
• Families may require additional support to encourage the empowerment of adolescents | |
• Assess transition readiness and disease knowledge regularly to continually address gaps | |
• Assessment tools are available worldwide, including the Ready, Steady, Go programme and TRAQ | |
• Adolescents and their families may require access to psychological support and resources | |
• Ensure collaboration between paediatric and adult clinicians to enable comprehensive planning and transition preparation | |
• Early communication and transfer of medical information allows adult clinicians to understand the individual needs of those in their care | |
• A primary coordinator/point of contact during and after transition can aid successful transfer to adult services | |
• Introduce adolescents to their new adult team prior to transfer | |
• Shared visits between paediatric and adult services may be beneficial prior to transfer | |
• Efforts to verify successful transfer are needed with further opportunities to engage provided if necessary |