Table 1 Patient sociodemographic and health-related characteristics (n = 82)
From: Cost of illness in inclusion body myositis: results from a cross-sectional study in Germany
Characteristics | n (%) or median (IQR) |
|---|---|
Male | 64 (78.0) |
Age | 71 (65–78) |
Age groups | |
  < 65 | 19 (23.2) |
 65–69 | 13 (15.9) |
 70–74 | 20 (24.4) |
 75–79 | 15 (18.3) |
  > 80 | 15 (18.3) |
Age at symptom onset (n = 81) | 58 (52–64) |
Age at diagnosis | 63.5 (58–69) |
Duration from other diagnoses until IBM diagnosis in months (n = 35) | 24 (6–48) |
ENMC criteriaa | |
 Clinico-pathologically defined | 36 (43.9) |
 Clinically defined | 28 (34.1) |
 Probable | 18 (22.0) |
BMI (n = 81)b | |
 Underweight | 0 (0) |
 Normal weight | 37 (45.7) |
 Overweight | 36 (44.4) |
 Obese | 8 (9.9) |
Marital status | |
 Single | 1 (1.2) |
 Widowed | 6 (7.3) |
 Divorced | 6 (7.3) |
 Married, living apart | 2 (2.4) |
 Married, living together | 67 (81.7) |
German geographic locationc | |
 West | 73 (89.0) |
 East | 9 (11.0) |
Employment status (n = 81) | |
 Retired | 65 (80.2) |
 Non-working due to IBM | 2 (2.5) |
 Employed | 9 (11.1) |
 Self-employed | 5 (6.2) |
Educational level (n = 80)d | |
 Low | 1 (1.3) |
 Medium | 46 (57.5) |
 High | 33 (41.3) |
Housing conditions | |
 Flat | 28 (34.1) |
 House | 47 (57.3) |
 Home for the elderly | 1 (1.2) |
 Assisted living | 2 (2.4) |
 Nursing home | 4 (4.9) |
Removals due to IBM | 16 (19.5) |
Reasons for removals due to IBM (n = 16)e | |
 No accessibility | 15 (93.8) |
 Subsistence not possible | 10 (62.5) |
 Removal recommended by others | 8 (50.0) |
 Independent housework not possible | 7 (43.8) |
 High caregiver burden | 3 (18.8) |
 Loneliness | 2 (12.5) |
Financial difficulties due to IBM (n = 79) | |
 Not | 32 (40.5) |
 A little | 24 (30.4) |
 Quite a bit | 14 (17.7) |
 Very | 9 (11.4) |
Statutory health insurance (n = 80) | 54 (67.5) |
Care levelf | |
No care level | 30 (36.6) |
 Care level 1 | 0 |
 Care level 2 | 18 (22.0) |
 Care level 3 | 20 (24.4) |
 Care level 4 | 9 (11) |
 Care level 5 | 5 (6,1) |
Degree of disabilityg (n = 77) | |
 No degree of disability | 12 (15.6) |
 20–40 | 6 (7.8) |
 50–70 | 21 (27.3) |
 80–100 | 38 (49.4) |