Cost of illness in inclusion body myositis: results from a cross-sectional study in Germany

Table 3 Estimated annual COI per patient in € and US$ for the reference year 2021 (n = 82)

	Mean ± SD in € per year	Mean ± SD in US$ per year	% of total COI
Outpatient consultations^a	830 ± 1699	1122 ± 2295	1.1
Inpatient treatment	1773 ± 5426	2396 ± 7332	2.3
Rehabilitation (in-/outpatient)	769 ± 1673	1039 ± 2261	1.0
Pharmacotherapy	22,629 ± 33,430	30,579 ± 45,176	29.8
Other therapies (e.g., physiotherapy)^b	3496 ± 3,231	4725 ± 4,366	4.6
Medical aids	3048 ± 6,133	4119 ± 8,287	4.0
Formal care	99 ± 535	133 ± 723	0.1
Total direct medical costs	32,645 ± 36,920	44,115 ± 49,892	43.0
Informal care	31,319 ± 47,880	42,323 ± 64,703	41.2
Nonmedical community services	2916 ± 8448	3941 ± 11,416	3.8
Constructional modifications and investments (home, car)	3062 ± 9543	4138 ± 12,896	4.0
Other expenditures (e.g., advocational support)	33 ± 160	44 ± 216	0.0
Travel expenses	440 ± 745	594 ± 1,007	0.6
Total direct nonmedical costs	37,770 ± 52,189	51,041 ± 70,525	49.7
Total direct costs	70,415 ± 63,595	95,155 ± 85,939	92.7
Total indirect costs	5,570 ± 27,409	7,527 ± 37,040	7.3
Total COI	75,985 ± 67,391	102,682 ± 91,069	100.0

COI cost of illness, SD standard deviation. Percentages may not total 100 due to rounding
^aOutpatient consultations include physician visits (specialized and general practitioners) and psychological support
^bOther therapies include physiotherapy, occupational therapy, speech therapy, complementary and alternative medicine and sport programmes
COI were calculated in euros and converted into US dollars (1US$ = 0.74€; reference year 2021) [48]

ISSN: 1750-1172