From: Patient pathways for rare diseases in Europe: ataxia as an example
Reasons | UK N (%) | Germany | Italy |
---|---|---|---|
Problems with travelling / transport to SAC | 12 (25.5%) | 5 (16.7%) | 12 (26.6%) |
Did not find it useful | 6 (12.8%) | 1 (3.3%) | 8 (17.8%) |
Not referred again | 7 (14.9%) | 1 (3.3%) | - |
Equal care locally | 2 (4.3%) | 4 (13.3%) | 8 (17.8%) |
Unable to take the time off work to visit the centre | 0 (0%) | 0 (0%) | 0 (0%) |
Other [please specify in the text box] | 5 (10.6%) | 10 (33.4%) | 9 (20%) |
Unsure | 2 (4.3%) | 9 (30%) | 8 (17.8%) |
Do not wish to answer | 1 (2.1%) | – | – |
Closure of a centre | 12 (25.5%) | – | – |
Total N respondents | 47 (100%) | 30 (100%) | 45 (100%) |