Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience

Table 2 Questions from clinicians and young SCD patients to expert patients

1	As someone living with SCD when you have a painful crisis what do you want your doctor to ask you?
2	What feature in any new therapy would make you agree to adopt it?
3	What better ways are there for doctors to communicate with you?
4	What is the right term: ‘people with SCD’ or ‘patient with SCD’
5	How can we tackle racism and stigma from healthcare providers?
6	Do you feel you have enough information if you got COVID19 and if not what can be done?

ISSN: 1750-1172