Table 3 Questions from teenage SCD patients to adult patients

1

If you got the chance to change 3 things in your journey till your mature age, what would you’ve changed?

2

Will I be able to live normal like other kids and be strong to do anything like other normal kids?

3

Will I be on medication throughout my lifetime even if I oft for bone marrow transplantations

4

How does it affect relationships?

5

When I’m older can I still enjoy fun activities with my friends? I want to get piercing but I’m always told not to and I feel like I’m missing out

6

Does the sickle cell disease go at a certain age or not?

7

What are the health challenges on older people in these different areas: Employment, sex, hospitalisation, vacation by air?