Total N = 74 (100.0%) | WEP-CARE n = 38 (51.4%) | TAU n = 36 (48.6%) | Statistics | |
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Parents | ||||
Gender: female n (%) | 66 (89.2) | 36 (94.7) | 30 (83.3) | χ²(1) = 2.49 p = .114 |
Age in years M (SD), min - max. | 40.18 (7.65) 26–57 | 39.89 (7.38) 26–56 | 40.47 (8.02) 26–57 | t(72) = − 0.32 p = .748 |
Completed educational/vocational training, or university education n (%) | 73 (98.6) | 37 (97.4) | 36 (100.0) | χ²(1) = 0.96 p = .327 |
Current employment n (%) | χ²(3) = 7.43 p = .059 | |||
Non-working | 19 (25.7) | 12 (31.6) | 7 (19.4) | |
Full-time employed | 13 (17.6) | 3 (7.9) | 10 (27.8) | |
Part-time employed | 31 (41.9) | 19 (50.0) | 12 (33.3) | |
Occupational retraining or marginally employed | 11 (14.9) | 4 (10.5) | 7 (19.4) | |
Living together with a partner: n (%) | 60 (81.1) | 32 (84.2) | 28 (77.8) | χ²(1) = 0.50 p = .480 |
GAD-7 M (SD), min - max. | 11.78 (4.19) 7–21 | 11.53 (3.90) 7–21 | 12.06 (4.52) 7–21 | t(72) = − 0.54 p = .591 |
FoP-Q-SF M (SD), min - max. | 40.04 (7.37) 25–56 | 39.61 (7.34) 25–56 | 40.50 (7.49) 27–56 | t(72) = − 0.52 p = .605 |
PHQ-9 M (SD), min - max. | 10.78 (4.60) 2–22 | 10.74 (4.89) 2–22 | 10.82 (4.35) 3–20 | t(72) = − 0.08 p = .937 |
*ULQIE M (SD), min - max. | 47.78 (13.55) 11–82 | 48.43 (14.29) 11–82 | 47.09 (12.89) 17–73 | t(70) = − 0.42 p = .676 |
CHIP-D M (SD), min - max. | 23.83 (10.60) 1–45 | 23.52 (10.41) 1–45 | 24.16 (10.95) 3–44 | t(72) = − 0.26 p = .794 |
Children and adolescents | ||||
Gender: female n (%) | 30 (40.5) | 16 (42.1) | 14 (38.9) | χ²(1) = 0.08 p = .778 |
Age in years M (SD), min - max. | 6.94 (6.00) 0–24 | 6.68 (6.42) 0–24 | 7.21 (5.61) 0–17 | t(72) = − 0.37 p = .710 |
Rare diseases n (%) | χ²(3) = 3.99 p = .263 | |||
Metabolic diseases | 20 (27.0) | 8 (21.1) | 12 (33.3) | |
Congenital malformations | 16 (21.6) | 11 (28.9) | 5 (13.9) | |
Not specified chromosomal abnormalities | 15 (20.3) | 6 (15.8) | 9 (25.0) | |
Other rare diseases | 23 (31.1) | 13 (34.2) | 10 (27.8) |