Table 1 Caregiver and trial participant demographics

Sex, n (%)

Male

8 (17.4)

50 (100.0)

Female

38 (82.6)

0 (0.0)

Age, mean (range)

Age at time of interview, years

38.6 (27–50)^a

7.9 (3–17)

Age at diagnosis for all trial participants, months

–

24.3 (in utero–5 years)

Age at diagnosis for substudy participants, months

–

12.8 (in utero–20 months)

Age at trial entry for all trial participants,^b years

–

4.0 (2–12)

Age at trial entry for substudy participants, years

–

2 (2)

Caregiver/participant country, n (%)

USA

29 (63.0)

Spain

5 (10.9)

Mexico

4 (8.7)

Canada

3 (6.5)

France

3 (6.5)

UK

2 (4.3)

Race/ethnicity,^c n (%)

White

32 (69.6)

29 (58.0)

Hispanic or Latino

10 (21.7)

10 (20.0)

Two or more races

4 (8.7)

7 (14.0)

Asian

3 (6.5)

3 (6.0)

Black

2 (4.3)

–

Other (not specified)

–

1 (2.4)

Caregiver education,^d n (%)

High school or equivalent

6 (13.0)

–

Some college

8 (17.4)

–

Associate or technical degree

4 (8.7)

–

College degree

12 (26.1)

–

Postgraduate degree

9 (19.6)

–