Fig. 1

Respondents’ and proxy-respondents’(A) OI severity^a and (B) type^b. OI, osteogenesis imperfecta. ^aQuestions 18, 32, 46, 54 and 312 “How would you describe the severity of your/your child’s/your children’s OI? Answer options included mild, moderate, severe, prefer not to say, I don’t know. ^bQuestions 17, 31, 45, 53 and 311.” If you/your child/your children have received an OI type as part of your OI diagnosis or treatment, please indicate your type using the dropdown below.” Answer options included Type 1–Type 15, undefined type, I don’t know, prefer not to say, other type. Participants who responded “other” could provide a free text answer