Table 2 Respondent and proxy respondent demographics
Direct respondents | Proxy respondents | |||||||
|---|---|---|---|---|---|---|---|---|
Non-caregiver adults with OI n = 1,290 | Caregiver adults with OI n = 150 | Adolescents with OI n = 92 | Caregivers without OI n = 560 | Relatives n = 116 | Children with OI (n = 474) | Adolescents with OI (n = 171) | Adults with OI (n = 135) | |
Age, mean (range)a | 43.4 (18–85) | 42.0 (24–75) | 14.8 (12–17) | 41.9 (18–81) | 43.3 (12–87) | 5.8 (1–11) | 14.0 (12–17) | 25.6 (18–60) |
Women, n (%)b | 900 (70) | 108 (72) | 51 (55) | 465 (83) | 80 (69) | 214 (45) | 84 (49) | 67 (50) |
Geography, n (%)c | ||||||||
Europe | 807 (63) | 104 (69) | 41 (45) | 319 (57) | 102 (88) | 258 (54) | 111 (65) | 92 (68) |
North America | 327 (25) | 20 (13) | 22 (24) | 103 (18) | 9 (8) | 85 (18) | 26 (15) | 30 (22) |
South America | 55 (4) | 6 (4) | 8 (9) | 33 (6) | 2 (2) | 32 (7) | 3 (2) | 5 (4) |
Asia | 62 (5) | 16 (11) | 20 (22) | 87 (16) | 1 (1) | 84 (18) | 21 (12) | 7 (5) |
Africa | 6 (0.5) | 1 (0.7) | 0 (0) | 5 (1) | 1 (1) | 3 (1) | 2 (1) | 1 (1) |
Australia/Oceania | 33 (3) | 3 (2) | 1 (1) | 13 (2) | 1 (1) | 12 (3) | 8 (5) | 0 (0) |