Table 9 Prevalence of clinical signs, symptoms and eventsa
n, (%) | Adults (n = 1,440) | Adolescents (n = 92) | Proxy children (n = 364) | Proxy adolescents (n = 136) | Proxy adults (n = 95) |
|---|---|---|---|---|---|
Basilar invagination | 157 (11) | 10 (11) | 12 (3) | 9 (6) | 4 (4) |
Dental problems | 626 (43) | 33 (36) | 166 (46) | 52 (38) | 35 (37) |
Eye or vision problems | 424 (29) | 25 (27) | 69 (19) | 21 (15) | 16 (17) |
Fatigue | 964 (67) | 60 (65) | 170 (47) | 74 (54) | 47 (49) |
Fertility and reproductive problems | 38 (3) | NA | NA | NA | NA |
Fractures | 394 (27) | 38 (41) | 243 (67) | 74 (54) | 26 (27) |
Gynaecological and menstruation problemsb | 174 (17) | 12 (24) | 2 (0.9) | 7 (11) | 7 (17) |
Hearing problems | 606 (42) | 10 (11) | 20 (5) | 9 (7) | 12 (13) |
Heart problems | 162 (11) | 6 (7) | 11 (3) | 3 (2) | 1 (1) |
High blood pressure | 344 (24) | 1 (1) | 1 (0.2) | 0 (0) | 7 (7) |
Hypermobility | 378 (26) | 32 (35) | 139 (38) | 50 (37) | 21 (22) |
Joint problems | 558 (39) | 14 (15) | 47 (13) | 31 (23) | 15 (16) |
Kidney and bladder problems | 190 (13) | 7 (8) | 18 (5) | 6 (4) | 4 (4) |
Low and underweight | 53 (4) | 15 (16) | 78 (21) | 16 (12) | 8 (8) |
Lung or breathing problems | 282 (20) | 18 (20) | 24 (7) | 11 (8) | 12 (13) |
Mental health problems | 584 (41) | 42 (46) | 86 (24) | 37 (27) | 31 (33) |
Obesity and overweight | 489 (34) | 15 (16) | 32 (9) | 22 (16) | 24 (25) |
Pain | 1,178 (82) | 75 (82) | 261 (72) | 108 (79) | 72 (76) |
Problems with chewing, swallowing, and speaking | 98 (7) | 5 (5) | 41 (11) | 4 (3) | 11 (12) |
Scoliosis or other bone problems | 672 (47) | 55 (60) | 105 (29) | 82 (60) | 38 (40) |
Sexual problems | 151 (11) | NA | NA | NA | NA |
Sleep disturbance | 655 (46) | 27 (29) | 73 (20) | 29 (21) | 30 (32) |
Soft tissue problems or injuries | 789 (55) | 33 (36) | 132 (36) | 71 (52) | 37 (39) |
Stomach and bowel problems | 501 (35) | 30 (33) | 122 (34) | 34 (25) | 21 (22) |
None of the above | 41 (3) | 2 (2) | 8 (2) | 3 (2) | 5 (5) |
Prefer not to say | 4 (0.3) | 0 (0) | 1 (0.2) | 0 (0) | 2 (2) |