Table 1 Participant demographics for ALD interviews
From: Patient-reported impact of symptoms in adrenoleukodystrophy (PRISM-ALD)
Interviews completed, n | 17 |
Sex, n (%) | |
 Male | 15 (88.2) |
 Female | 2 (11.8) |
Race, n (%) | |
 White | 16 (94.1) |
 Omitted | 1 (5.9) |
Hispanic or Latino, n (%) | |
 Yes | 1 (5.9) |
 No | 16 (94.1) |
Age in years | |
 Mean ± 1 SD | 48 ± 13 |
 Range | 23–72 |
Age at diagnosis in years | |
 Mean ± 1 SD | 30 ± 17 |
 Range | 2 to 62 |
Ambulatory status, n (%) | |
 Fully ambulatory, no assistance | 3 (17.6) |
 Ambulatory with canes/assistance | 9 (53.0) |
 Non-ambulatory/wheelchair | 5 (29.4) |
U.S. states represented, n | 8 |